A Family's Experience With The STARband Cranial Remolding Orthosis  
Pediatric nurse Elyse Davis and her son Lucas
 

Around five months of age, we started to notice our infant’s head becoming flat in the back on the left side. Our son, Lucas, continually favored his left side while lying down and also while in his swing, car seat and bouncy seat. When we voiced our concerns to our pediatrician, she referred us to a neurologist specializing in pediatrics.

After the initial exam, the neurologist prescribed a cranial remolding orthosis. We were concerned that Lucas would not tolerate wearing a helmet for 23 hours a day for 3 months. We were also concerned as his parents, how the stigma of Lucas wearing a helmet would affect us. We recognized the need for him to wear the helmet and knew it was the right thing to do in order for his head to form properly.

Our concerns quickly subsided when we met with an orthotist who worked directly with Orthomerica, the manufacturer of the STARband. Everyone involved made us feel very comfortable and answered any questions we had. They were especially nice and gentle to Lucas during the fitting process. After just a few outings with Lucas wearing his new jungle print helmet, we were no longer concerned with how people would react.

A major factor that made us feel even more comfortable was that the STARband did not bother Lucas. From the first time he put it on, he never tried to take it off and he was quickly wearing it 23 hours a day with no problems. Right away, we decided as a family that we would be dedicated to following the program.

After two months of wearing the STARband, we were extremely pleased when the neurologist told us that Lucas’ head was corrected, and he no longer needed to wear it. Now at almost eight months old, you would never be able to tell that there was ever a problem with his head. As a pediatric nurse, I am well aware of the benefits of early intervention. As a mother, I understand the concerns parents face in caring for a child with this condition. Thanks to our orthotist and Orthomerica for making our experience a pleasurable one.

—Elyse and Paul Davis

   
Resources
Caregiver Guide
 
 
- Spanish (available soon)
Repositioning Guide
 
 

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