Craniosynostosis

Luke

My son Luke was born July of 2012, he was diagnosed with craniosynostosis when he was three weeks old. We opted for a minimally invasive surgery at Oakland children's hospital in October of 2012. The surgery went great, and he was fitted with a STARband helmet the same month, and kept it on for approximately six months. His head shape is perfect, and we are so blessed to have a happy healthy four year old now. Everyone we worked with in fitting and adjusting his STARband helmet was wonderful and definitely helped us through a difficult time!

-Candace, Luke's Mother

Clay

My pregnancy was completely normal, and we had no clue there would be any complications. When it came time for me to be induced, the baby was not descending. I ended up being in labor for two days. Finally, with the help of pitocin, I pushed out my baby boy. The nurses noticed his head shape and a large hemotoma on the back of his head, but attributed it to my long, difficult labor, and thought it would fix itself. Baby Clay ended up having to be in the hospital for five days because the hemotoma caused him to have jaundice. While we were there, the pediatrician came by and said he thought the baby should see a neurologist, as he suspected Craniosynostosis. At two weeks old, we went to Rady Children's in San Diego and met with Dr. Hal Meltzer, who confirmed what the pediatrician suspected. He had us get a CT scan that day to verify, and we did. We soon met with the Plastics team at children's, and surgery was scheduled. At two months and three weeks old, my baby boy was going in for surgery to correct his Sagittal Craniosynostosis. The surgery took about six hours and soon after about 48 hours, he was back to his happy smiling self. A week after surgery, we went to the Hanger clinic to get fitted for his STARband. We listened to our orthotist and memorized our instructions, and followed them to a t. We never had issues that weren't easily corrected. After ten months in the helmet, my baby's head is beyond perfect! We could not be happier! My best advice to new parents experiencing this situation is to listen to the experts and follow their advice. They've done this before, we haven't! We feel so lucky to have been able to be under the care of Dr. Meltzer, Dr. Gossman and Amy at the Hanger Clinic.

-Abbey, Clay's Mother

Clay 2.jpg

Max

Max was 2 months old when Kelly noticed his head shape was "off." Kelly brought it up to his pediatric doctor and he agreed. He gave Kelly a referral to a plastic surgeon and neurologist. He also wrote the diagnosis of craniosynostosis on the paper. Of course when Kelly got home, she googled craniosynostosis, and was scared of what craniosynostosis meant for Max. Max's new doctor ordered a CT scan to make sure he wouldn't need surgery, as they thought his soft spot sutures had fused. Thankfully, they were open and all that was needed was a helmet to shape him up. The next couple of weeks, Max got a scan, and his helmet and adjustments were finalized. The team of doctors and specialists that worked with Max and his family during this time was a refreshing experience. Within a matter of weeks, Kelly could already see Max rounding up, and he was off in a few months.

-Kelly, Max's Mother